Privacy Policy

We are committed to protecting and respecting your privacy. For any personal data

you provide for the purposes of your membership, Parkinson’s UK is the ‘data

controller’ and is responsible for storing and otherwise processing that data in a fair,

lawful, secure and transparent way. The full version of Parkinson’s UK’s Privacy

Policy is available on the Parkinson’s UK website

(www.parkinsons.org.uk/about- us/privacy-policy).

You can contact the data protection officer at dataprotection@parkinsons.org.uk or in

writing at 50 Broadway, London, SW1H 0DB. You can also raise any concerns with

the Information Commissioner’s Office, contact details for which are at

https://ico.org.uk/global/contact-us/

You may give us information about yourself when filling in membership forms at an

event or online, emailing, phoning, corresponding with us or otherwise. This includes

information you provide when you register with the local group and subscribe to our

newsletter. The information you give us may include your name, address, email

address and phone number.

The reason we need your data is to be able to provide the membership services you

are signing up to when you register with the local group. Our lawful basis for

processing this data is that it is in the legitimate interests of the local group and its

members. We will use the data only in the ways you would expect – to run the group

and support its aims.

 

Our lawful basis for sending you marketing by electronic means is your consent.

Reasons we need to process your data include:

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 For membership and management

 Processing of membership forms and payments

 Sharing data with lead volunteers to provide information about local group

activities, membership renewals or invitation to activities and events

 Local group newsletter promoting charity activity

 Marketing and communications (where separate consent is provided)

 Sending information about fundraising and promotions

 

On occasion, we may collect personal data from non-members (eg any non-member

participant who fills in a health disclaimer or carer). Our lawful basis for processing

data is consent. We will ask for consent at the point of collecting it.

Where we have social media pages, all members are free to join these pages. If you

join one of the Social Media pages, please note that provider of the social media

platform(s) have their own privacy policies and the local group does not accept any

responsibility or liability for these policies. Please check these policies before you

submit any personal data on the social media pages.

We do not share or sell your data to any other charity or company for their marketing

purposes. However, there are some situations where we use suppliers to help us

administer the services we supply to you, for example:

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 Companies who deliver bespoke events for us

 Organisations or individuals who work with us to provide services for you – like

local services like exercise classes or complementary therapies

 Website hosting companies we use to administer our website content

 Online hosting companies to facilitate events, meetings and webinars

 

Under some circumstances we may disclose or share your information without your

consent, for example if we are required by the police, the courts, or for other legal

reasons, including:

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 sharing accident and incident information with the Health and Safety Executive

 to report safeguarding concerns

 

There are formal contracts in place that ensure this processing complies with the

law. We handle your personal data with appropriate safeguards in place to ensure its

security and we ensure that third parties do the same.

We will hold your personal data on file for as long as you are a member with us. Any

personal data we hold on you will be securely destroyed after one year of inactivity

on your part, in line with Parkinson’s UK’s data retention policy. Your data is not

processed for any purposes other than those detailed in this policy.

We take our obligation to keep your personal data safe and secure very seriously.

Our nominated volunteers are only allowed access to your personal data if they have

been sufficiently trained in data handling.

We collect personal information about you in several ways:

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 on our website (if applicable) when you: when you utilise the contact us form

 when you register to attend one of our in-person or online events

 when you contact us about one of our services

 when you have used a social media platform to contact us – eg Facebook

As a ‘data subject’, you may have the right – at any time:

 to request access to, rectification or erasure of your personal data

 to restrict or object to certain kinds of processing of your personal data, including

direct marketing

 to the portability of your personal data and to complain to the UK’s data protection

supervisory authority, the Information Commissioner’s Office, about the processing

of your personal data.

 

If you wish to exercise any of your rights, you can contact the data protection officer

at dataprotection@parkinsons.org.uk or in writing at

 

Parkinson’s UK,

50 Broadway,

London,

SW1H 0DB.

 

January 2025